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John was a beacon of light and hope for me during my journey with vasculitis. I first connected with him in 2015, after being forced to quit my Rheumatology career due to the illness. He spurred me on and after meeting him and Susan in 2016 at the BSR in Glasgow, we worked on various projects. Our Saturday evening Skype calls were an absolute delight. He dedicated his time and energy selflessly and tirelessly to the vasculitis community. Here, he is joining me to do a lap during my moving forward with vasculitis 5k walking challenge 2years ago, at the Manchester arena. Thank you John for everything you did for me and the vasculitis community. You will remain alive in our hearts always. Be at peace, my friend. Shanali Perera
John and (‘my’) Susan were regular visitors at Litton school. A lovely man who will be sadly missed by his equally lovely granddaughters. I was a pleasure to know him Bridget Hanley
John (and Susan) saved my life back in 2009 before Vasculitis UK was born (formerly Stuart Strange Vasculitis Trust) when I first contacted them, for which I will be eternally grateful. I then started volunteering as a way to pay back the kindness shown to me. I learned so much about my form of Vasculitis (as well as plenty of others) from John, meaning I was better able to advocate for myself and others. The progress I’ve seen within my hospital trust (Leeds) alone is remarkable but I know he was also responsible for hospitals all over the UK, Europe and other countries becoming more aware of Vasculitis, how to diagnose it more rapidly and will have saved thousands of lives around the world thanks to his dedication. I was proud to call John my friend but even more proud to call him my hero. No one deserved the MBE he received more than him and I’m glad he was recognised for his hard work, dedication and selflessness for the Vasculitis community worldwide. I will choose to remember him as the intelligent, dedicated, caring man he was with his fabulous sense of humour that was often displayed with a glint in his eye. My heart goes out to Susan and his family who have lost their world. The world and the Vasculitis community has also lost a legend but, thanks to his work with Vasculitis UK, his legacy will live on forever. Sleep tight John and rest in peace my friend. Your fellow ginger ninja, Kelly xxx
John, you were a total gent, who worked fearlessly for others. You have changed and improved so many lives, you will be so very missed. Personally you helped me so much, and I will always be grateful and remember your kindness, intelligence and knowledge. Thank you. I will also miss your forceful Twitter posts to those in charge- you often made me smile with your comments. Rest well and thank you Jane Edwards
Christine Lee
Christine Lee
Such sad news! I joined the charity when it was The Stuart Strange Trust. I can therefore really appreciate the transformation that John (and Sue) have made to the charity. He was always helpful and ready to give advice , even when he must have been so busy. Nothing waa ever too much trouble. He worked hard for such a long time to the benefit of us all. Christine Lee
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