30-08 2023 22:29
wrote:
I was very saddened to hear this news of John. He did such sterling work on raising the profile of VUK. I met him on a few occasions and was always impressed by the calm and efficient manner in which he remodelled this charity. As a fellow sufferer of GPA there was a complete dearth of information available when I was first diagnosed and it took several months to build up a picture of what I had! With the revamping of VUK quality information was compiled and made accessible from a single location. If this had been available on day one a lot of time and anxiety would have been saved - well done John for achieving this!! The links created with the medical specialists and the research being funded are now the key to the future.
Sincere condolences to Susan and all the family - a sad loss for all.
30-08 2023 22:29
wrote:
I was very saddened to hear this news of John. He did such sterling work on raising the profile of VUK. I met him on a few occasions and was always impressed by the calm and efficient manner in which he remodelled this charity. As a fellow sufferer of GPA there was a complete dearth of information available when I was first diagnosed and it took several months to build up a picture of what I had! With the revamping of VUK quality information was compiled and made accessible from a single location. If this had been available on day one a lot of time and anxiety would have been saved - well done John for achieving this!! The links created with the medical specialists and the research being funded are now the key to the future.
Sincere condolences to Susan and all the family - a sad loss for all.